Saturday, November 18, 2006

So it's been three years.

And MS is now just a part of my life, not the ruling force. The tingling in my feet, legs and hands has never left me. Some days, it's worse than others, but it's always here. Ironic, considering that it was the neuropathy that led me to a doc for diagnosis. In that, I was amazingly lucky--there are people who wait sixteen years for a diagnosis and I had one in six weeks.

Some other things I've been lucky in with regard to the MS:

My "MS Guru," Patty, who is a client, a nurse, and was diagnosed 13 years ago. She was absolutely correct--the first year is all about the MS. Working in the garden led to thoughts of "How long can I do this? IhaveMS." Flirting led to thoughts of "Should I tell him IhaveMS?" It went on, and then, thankfully, I moved on.

My neurologist, Dr. Cohen, and the rest of the cheerful and friendly staff at the Mellen Center at the Cleveland Clinic. It's worth the 45 minute drive to get up there. As an aside, I'm very glad his first nurse practioner, Nurse Tardy, retired. I thought I was going to pop a blood vessel the morning she walked in past me 20 mintues after our scheduled appointment time! The new NP is a punctual, friendly, warm person, yay!

The fact that my MS is mild, and that the resident at my GP's office just wouldn't quit until we knew what was wrong with me. Thank you, Dr. Adolph, and I hope that whatever line of medicine you chose after your time at my doc's office, you have patients who appreciate your tenacity and your capacity for listening.

The fact that the MS community is so warm and open and caring. To the folks in the local society, who made a nervous, shy stranger very welcome at that first Christmas luncheon and the folks at Jooly's Joint, who I met when I was terrified that my bout of optic neuritis was going to lead to permanent blindness in my left eye. Thank you all.

Some things I'm not thankful for:

Well, okay, I have MS. It's mild and it's in remission, but it still sucks.

The cost of my meds--$17,000/year. That's about the Federal poverty guideline for a family of three.

The MS depression which has me taking a little more Lexapro every year, when I managed my depression for 25 years without meds. I still hate that I'm dependent on a pill to keep from sleeping 24/7 when things go wrong.

So it's been three years, and I'm lucky things aren't worse, and I'm proud of me for making sure MS is just a minor part of my life, not the central facet.

10 comments:

Sherri said...

And we are happy you are doing well. Everyone gets something to handle in this life. The trick is doing it with grace, which you seem to have mastered. (and shut up and take a compliment ;) )

Scott said...

Yes, Jammies, take a compliment. You're doing great and have more to deal with some of us like me who like to spend so much time moaning and groaning about things.

Alessia Brio said...

*girl kisses* I'm so glad you're you & that you're a part of my life.

Jammies said...

*blushes, shuts up, accepts compliments*

I adore all of you, and am glad that you are all part of my life.

*channels Donkey*

"Oh ya got ta have FRIENDS..."

*kisses all around*

Jay Jacobs said...

hugs and love girl!

Jay Jacobs said...

My key word was "hhurlaxm"?!?

that sounds like a Med if I ever heard one!

snicker said...

Spotted brain, you're not much fun,
You make me fall,when I run.

Yes, I may trip and bang my knees
lie in the snow, my butt to freeze,

But never shall I give up,
or snicker friend will whip my butt.

Happy Tanksgivin'!

Jammies said...

*hugs and love* back, Jay

Damn you, Snicker, how DARE you write a song that is better than my slug song?

*big mooshy non-lesbian hugs*

brendan said...

Best wishes, Jammies, and happy Transatlantic turkey.

Jammies said...

Thanks, Brendan, and I'm sorry about your blog. Stupid spammers.

*hugs*